While we waited, with bated breath, for a return to our ‘normal,’ she breathed a heavy sigh, of relief. While we stepped in, she stepped out, and we saw our impact on her, more clearly. While she regenerated from, our relentless destruction, we planned for, next. We will either learn, to respect her, or we will continue, to destroy her. Have we not learned, yet, that to destroy her, is to destroy, ourselves? So step in with me, for just a while longer, and think about how, you do, next. ~Marcela: letting her breathe, so that you and I can continue to do so. May 03, 2020
You may or may not know that my body has been invaded by the Triple B threat of Borrelia (1) Babesia (2) and Bartonella (3). You may or may not care. You may or may not understand how insidious they are, the myriad myths (4) attached to them, the damages they cause, the havocs they wreak on every.single.living cell in the human body, every.single.life-sustaining.system and organ (5), or the dignity-affronting disdain, with which people like me, are (mis)treated.
People like me who were either mis- or un-diagnosed, or simply dis-regarded by so-called professionals in the sick-care system, and Joe and Jane ‘normal,’ alike. People like me for whom current mainstream and/or first lines of treatment are not only ineffective, but more often than not, make things worse, because the bugs are skilled adapters, persisters, and have the capacity to morph into different forms, to hide, in their ‘host,’ in this case, me. People like me who have concrete proof to present (e.g. MRI, ECG and other test results), but are repeatedly told that things like the lesions in our brains, the heart issues and so on and so on, are unrelated random, symptoms. People like me whose bodies are under siege by ever-growing armies of bacteria and/or malaria-like blood parasites. People like me who are categorically dismissed, left to our own devices, our own financial and other resources, with waning physical energies and often severely challenged cognitive capacities (because don’t forget, there is a bacterial and/or parasitic battle for territory, going on in our bodies/brains). People like me, are left to figure things out, or sadly, to just go away because even trying to talk about it anymore, with anyone, anyone at all, is a real and present trauma, and it becomes increasingly difficult ‘to deal,’ in all aspects of human functioning.
I should have pursued a PhD in tick-borne illnesses instead of Social Work and Counselling Psych., oh wait, I have! I just don’t get the piece of paper or letters behind my name for my time, money and troubles, but I digress, how odd… I may or may not care anymore about what anyone in the above noted groups think/believe/judge, about any of it. Stop, revise: I aspire, to get to the point when I am no longer vulnerable, susceptible to the derision noted previously, and the despondence it creates inside me, every.single.day.
What I do care about, is staying on my feet well enough to facilitate the continuing, perhaps lifelong battle, that this is; while maintaining some semblance of balance between sickness, and a desire for so much more out of the rest of my life, than that which is currently my reality.
The most recent manifestation and issue directly related to this scourge for me, is one not unknown in the Lyme & Co. trenches, and targets many whose bodies are developing (secondary to treatment), potentially life threatening filtration organ and detox (e.g. lymph drainage) system failures.
Reader’s Digest: We need to keep killing the bugs to stay alive because the havocs they wreak when left unchecked = extreme suffering and eventually a long and painful death, but; killing them creates endotoxin die-off which the body increasingly struggles to process, detox, eliminate. The kidneys, liver, lymph drainage and other filtration systems, already taxed to the max by the bugs, begin to malfunction and eventually fail.
This then, has been my predicament since November, when I had to stop all pharmaceutical, and most herbals that successfully kill the bugs, because all of my above noted drainage and filtration systems began to fail.
Being the proactive human I am, despite, stop; revise: because of my current and now prolonged battle, I have consulted with those in the know, done my research, and practice all manner of time-consuming, money-munching practices, protocols and procedures, in an effort to support my body eliminate the bad stuff; and all of that, with insultingly insufficient results. So in all my spare time, please read the intended sarcasm into that comment, I went back to my research drawing-board, consulted with previously mentioned ‘in the knows,’ and learned that many folks on this end of my precariously tilting ship, have had good success supporting the failing filtration and detox systems, with the use of Infrared Saunas.
Thus began a process of meticulous research, in all that spare time, into the finer points and distinguishing features of this wooden hot-box technology, which are better and why, and what to avoid at all costs, received the final seal of approval from my ‘in the know’ docs and proceeded with a methodical hunt for my very own box, used of course. Because that’s how I prefer to roll, even if I had all the money in the world, because there’s more than enough perfectly good pre-loved ‘stuff,’ in the world and the consumption of anything, is an ethical imperative. But again, I digress…
It was a with a heavy heart that I quickly gleaned that the reality of what I need, far superseded anything attainable, given what it costs me in pharma and naturopathics alike, to barely stay on my feet, because none of it is covered. So much for working in the sick-care system… but really, am I surprised, or naïve? Maybe…
And so with an equally heavy heart, I reached out to two online sellers of a hot-boxes that met all of the requirements for my needs, gave them a bit of background, and inquired as to whether or not they would be willing to support a payment plan. One responded with a resounding and owie-producing fuck you, and the other stated that she has many folks ahead of me in queue. My heart grew yet heavier as I reached out to you(s), my eclectically eccentric, further and nearer flung village and tribe, and you made it happen for me.
The woman with many in a queue reached back, took her price down by $100, and she and her husband delivered the hot-box to my patio. The Sailor helped me put it together, and as I write this, I weep tears of gratitude for all of you. I have been sweating regularly for a while now and my liver and kidney counts went back to almost normal just prior to the other big C-bug we are all dealing with, and my lymph nodes are less inflamed and painful, but I hope to brave a lab this week for more conclusive testing.
Testing which will determine whether or not I can re-start a heavy-hitter bug-killer. I cannot restart the NUKER until the C-word bug is done with all of us, because the levels of alcohol and other chemicals in everything we use to stay safe at work and that I need to use while out in the community could literally kill me in conjunction with said NUKER, it is a complex protocol and requires a vigilance in terms of food and topical products that is absolutely undoable in the current state of life and affairs. But, I consulted with one of my brilliant docs, and we are looking at a lesser-used anti-biotic that crosses the blood/brain barrier, in conjunction with a couple of other anti-microbials which target different bugs in different systems, in an effort to get a handle of theses beasts again. This particular anti-biotic (Minocycline), is known to cause massive die-off (good) toxicity (very bad), so it is risky relative to my very susceptible liver and kidneys, but I am going to give it a shot.
FFW to today:
I could not be in this position without your help, the sauna, and a number of other add-ons/protocols have made a difference, and coincidentally, the sauna is not a bad thing to have around to help my body with the big C-bug, should I become infected.
Blood sweat and tears has taken on new meaning, and I thank you, from the bottom of my tired and literally broken (by bugs) heart. You are the same handful of people who always suited and showed up when I fund-raised for others in the past, the people who have worked hardest/longest/trudged the most, to have what they have, which in some cases, is very little, I know this to be true. Nothing, but nothing, has ever come easily to any of you. I know this to be true. The same, staunch in their support of me handful of people, that have been there, for a very long time, some, my entire life.
It did indeed, take this village*, to raise (up) from the trenches, this hurting and battle-weary child, and the child is grateful to you, so very, deeply, grateful. You personify the best of humanity and I am privileged, so much richer, for your respective parts in my life. I will not let you down. I will continue to wage this war. How can I not believe in myself, when you so fervently continue to do so? With more love than the word will ever do justice to,
April 05, 2020
*M.P., S.G., C.W., C.M-S., K & K, J.R., J.M., R.W., P.C.Y.
A book of Mormon or a lion’s head bowl your dirty old sneakers and a used camisole A camping potty and a broken TV world’s ugliest chair contest-winner and its mate, the settee A tall concrete tiki set or a big rusty clock and bald vroom-vroom tires for the wannabe jock A Loong Foong vintage cookie tin and a scuzzy old toilet or a decrepit old rocker but don’t sit lest you spoil it A pair of leather-like boots or a real-plastic dresser and some moldy old books from a dusty professor An inflatable hot tub and fake-rattan patio chairs or some lightly used razors includes gross chinny-chin-chin hairs Some creepy old doll parts or a bagful of ‘hemp’ seeds all ready to sow and 2 dozen duck eggs though not in a row A box of A & W Mugs and ‘a fake owl to scare birds’ or a disgusting old hamster cage opportunely pre-soiled, comes with used turds An ‘Old-antique’ horse lamp and a ‘dead’ cow rug or some grossly stained mattresses replete with bed bugs A giant Yahtzze set and miniature chairs made of wicker or a pre-cracked ‘antique’ mirror prices are firm, please do not dicker Cement garden pigeons and barbicide for dog groomers or 4 and 6 inch flex hoses for all the DIY boomers These are but some of the ‘treasures’ You want me to buy Steals of a Deal And (crap)Pies in the Sky Thank you but no deal, at the best of times I would pass, but now during COVID I’d like to kick your sad ass. So Fuck-the-Fuck-Off, which means stay-the-fuck-home re-use and re-cycle up-cycle that thing please stop being a chump or WHEN COVID is done with us take your shit to the dump! With all the love I have, ~Marcela: Asking, begging FB Marketplace and local buy/sell/trade groups everywhere, to take the example of Ladysmith BC, and PLEASE shut.it.down, for the duration! These are NOT essential services, but they ARE actively contributing to the problem! No amount of legal-ass-covering-guidelines are going to change the thoughtless actions of STUPID; the OTHER pandemic. April 04, 2020
As I rummage and ruminate, categorize and discard, too many items, and thoughts, long of little utility, to you or I, though stubbornly occupying space, in my physical and internal environments, I am thunderstruck! …with that which we pay lip-service to; as a matter of course, in our excessive, daily rabblings and babblings; but rarely to never, truly abide by… . And of a sudden, nothing matters! Nothing; …with the exception, of how we choose to utilize, This Moment. And of a sudden, in this temporarily, to the outside world obligation-less life, I find freedom. ________________________________________________________ With boundless love, ~Marcela: choosing to live well, in the midst of my own, and our collective, uncertainty. March 24, 2020.
There have been others since I came to live here, but you commanded and kept my attention, from the first time ever, that I saw your extraordinarily bright, red paint.
And since that moment, when you dwarfed everything around you and obligated me to see you, I have wanted to get closer, wanted to get a better view, and always wanted, always yearned, to see you again.
I needed to experience your power, relentlessly, and with great fervor. And for weeks now, I have been captivated by you, visually, psychologically, emotionally, and with irrevocable commitment.
And I have compulsively sought you out, with the diligence and precision of a skilled stalker, from every vantage point, in this hilly town.
For weeks now, each and every morning, I have clambered groggily up to the step-stool view in my sleeping chamber, because knowing you were there allowed me to face another day, and I have been awed by the turmoil you create, deep, so deep inside me.
For weeks now, each and every evening, no matter how fatigued, I bid you good night, because you give me some measure of consolation, succour, in my solace-less world.
You have represented all that is true about me, the contradictions, and I am as contentiously conflicted about you, as I am about most things.
Your intensity screamed to my own; and like the others in the bay, like me, you are a political and personal hot-potato, and I love you-I hate you, come here-go away, fuck-off, no! fuck-on!
And you present me with a familiar quandary: what is right for the world around me versus what I get, what I need, from you, from the world around me.
And so by direct extension, you have been a secret, conflicted indulgence, analogous for me, to beautiful footwear, but made in China by slaves and their enslaved children.
And I have viewed you with my naked eyes, and through binoculars, and I have captured you with my camera over and over again, from my step-stool view, from the highway coming home, from my excursions on the hilly trails, and from my perambulations about the town.
And this morning, when I opened the curtain to greet you, you knocked the breath right out of me, for the light had you glowing in shades of gold and pewter, and I was mesmerized, shaken to the core, by the beauty of you, and the light, the indescribable, iridescent light, and the way you played together, with, and in the sea.
And I remembered Barrett-Browning, and knew I will do well to concern myself with, fly toward the light, despite additional bruising of my oh-so broken wings.
And my despair collided head-on inside me with the memory of who I am, the shine and vibrancy used to describe me for decades by others, now hoarded away far too long, by me, recently, because: pain.
And I wonder; if like me, despite meticulous maintenance of mechanical parts and attention to aesthetic details, you may meet an undignified, rusted out, abandoned, demise?
But your light rouses me from the melancholy of this early morning reverie and while you are neither Sunflower nor Water Lily on a A Sunday Afternoon on the Island of La Grande Jatte, van Gogh, Monet, Seurat alike, would have been as awestruck by that light show, by your radiance, as I.
So it is little wonder that this evening, upon reaching the place on the highway, the place where I always spy you first, returning from my hated-reality, hot tears burned my cheeks with a vengeance that took me by surprise, but at the same time, not at all.
For I realized that you had left me, as I knew you would; suspected this very morning, that today might be that day, the day I find you gone.
And all that, in a painful morning stupor, while bedazzled, so very smitten, by your glow, your nod to me, to heed Browning’s wise words, to keep fluttering my wings, toward the light, toward my light.
And I am so very grateful, to me, for all the times I hunted you down, from yet another place and angle. I am richer for having enjoyed you, and you fueled, no, you ignited, new fantasies of leaving, to live my art, whenever my eyes, my heart, the core of me, met your steel girth, your vibrant and vivacious red coat.
And I never coveted you more than this morning, never appreciated you more, than in those parting moments, when you willfully, boastfully even, occupied that space, your space in the vast vast sea, wearing the gold,
of the Queen you are.
~Marcela: one skin, 58.7 years, life/version 19.9, and counting.
March 04, 2020
Remnants Like an old (Czech) flag in the wind, tattered remnants of fear, flap relentlessly, in the recesses of my heart and mind; denounce and decry my worthiness of, the unorthodox life I crave. Whispers the fearless wild-child inside, “…burn the flag woman, burn the damned flag.” ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ With thoughts of my maternal grandmother, Žofie Schlosser Ševčíková, June 06, 1911 – November 17, 1995. She was inordinately dignified and quite literally worked her fingers to the bone for my mother and her. She did it while standing up to, and then leaving (unheard of at that time), a violently abusive, alcoholic husband. She did it during a time in war-torn Eastern Europe most of us cannot fathom, no matter how many history books we profess to have read. She was profoundly gifted in languages,and well-read. She toiled with her tiny body and life-worn hands,in a way we, of more recent generations cannot know. One of the things I remember most about her is the importance to her, of quality, in everything. And I wonder, knowing what I know about the drudgery, the losses, the sacrifices that were the bulk of her life, I wonder, given the opportunity to ask her about what she would have done differently, had she the chance to be anyone,to do anything,she desired,what that would have been. I am anxious this day,and she came to my mind. She was born 107 years ago. A mere blip on the radar of our Universe, not known to most, but remembered well, by me and my mama,her daughter, this day. ~Marcela: tattered in the process of (more, always more,) unfurling. Writing: All Rights Reserved / Image: Google Search June 06, 2018
Your chainsaw voice has dismembered the last vestiges of sanity in my human shell severed the final tendon connecting compassion to my heart Your rusty-grater words have shredded the final ounce of patience in my once limitless hoard corroded beyond salvage the walls containing my desire to be your ally Your atomic bomb behaviours have irradiated the remaining molecule of hope for your salvation jaded this now impermeable spirit to anything but its own voice.
It is a brutal irony, that as my desire to exit the work-world I so grindingly (yes, that is a word!) and lovingly built grows with a vehement vengeance each day, the place and space for which I pay such a hefty premium to escape to, has been anything but peaceful in the oh-so-limited time I have to enjoy(?) it, of late. The level of human disregard for others in some of my neighbours runs deep, the ridiculous human folly of my most inglorious work-folks, along with our culture’s obscene systems and structures, follow me home for longer and longer stays, and the gargantuan contradiction that is my life continues… on the flip-side, I have, without fail, only ever built anything meaningful, to me, on the foundation of strife, struggle and/or suffering… it appears that a skyscraper is in the making here…
~Marcela: corroded and unchained
March 18, 2018
Writing and original images: All rights reserved.
Chainsaw image from google search.
I know you not, love
For you come to me disguised
I get you not, love
For you speak to me in forked tongues
I hear you not, love
For you whisper to me screaming
I see you not, love
For you obscure my vision
I taste you not, love
For your sapor is but acrid
I smell you not, love
For your scent is cheap perfume
I feel you not, love
For your touch is numbing absence
I fear you not, love
For I have a valiant, purple heart.
March 15, 2016
Image credit: Vinoth Chandar
-I believe that we can change the world, one action at a time
-I believe that part of that is supporting one person, family, group, at a time
-I believe that providing that support directly, without conditions, to be utilized as the person(s) receiving it see fit, is crucial to anyone’s success in getting through a difficult time, whatever that is for them.
Chantale is this Sunday’s (June 7th 2015) walk/donations recipient. Her mission is to heal her body from Squamous Carcinoma and she has pursued hollistic and most recently chemo and radiation therapies. You can follow her journey here: Chantale’s Journey
She received little to no support from any number of systems in our world, the very systems designed to help, but fraught with loopholes, conditions, and vast gaps and crevices that folks in the midst of a fight for their very life and breath often cannot navigate, by nature of the very challenge that brought them to these systems. I am not looking to cure Chantale, only she, her body, mind and bottomless heart and spirit, along with the therapies she chooses can do that. I am looking to provide her some basics of life quality and comfort (not having to worry about rent/food/rides to the hospital…), while she navigates this multi-barriered road in an effort to help herself.
My son Thomas & I can walk 50K on Sunday (we’ve done it before… let’s hope we do it again), my mama Marcella and the beautiful (hu)man Dieter can bring us refreshments and cheer us on when it gets hard, but our financial resources are not bottomless, so it has always been my belief, that many of us giving a bit, more often, is more effective in the long term, than a few of us giving more less often.
I have never met Chantale, but I have grown to love her fiercely, for so many reasons, but primarily, because she fought for her right to decide what was best for her in the face of severe opposition and betrayal by previously noted systems, and because when faced with few alternatives, she still hasn’t given up, just broadened her perspective about said alternatives and come at it from a place we could all do well to emulate; a place of love for self, and acceptance of what is, as opposed to what should be.
So here is my request to all of you: Send $20, or $10 if that is all you can do, it’s four, or two, fancy coffees, one meal you pack to go instead of eating out. It might not make that huge a dent in your life right now, but I know it will in Chantale’s, particularly as she now begins the upward climb of healing from the therapies she has undergone for the last several weeks. Please help us help.
History and other links regarding this current and past actions are here:
FB Page is here:Walking With Love For You
Internet Banking E-transfers to: email@example.com (please remember to send a security question/answer)
Cash and/or bottle returns: I’ll pick it from you where/when ever is convenient
Cheques payable to M. Mrnka, c/o: s.a.f.e – #204, 107 Evans Street, Duncan BC, V9L 1P5
Remember last year?