Monthly Archives: May 2019

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This is NOT a Sob Story: Part Two: Missive from/to a Salty-Sailor

26 Sunday May 2019

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From: John R Sent: Friday, May 24, 2019 11:33 PMTo: Marcela Yvonne Subject: Re: Just wondering….

Yo babe….
How are things at your end? I hope summer has arrived there.  It has only been the last couple of days that it has warmed up here. Prague, Vienna, Zagreb, Ljubljana, Belgrad, Prishtina,  Sarajevo all required sweater and jacket.  Here in Mostar was hot yesterday.  Just waiting for a bus to Budva in Montenegro right now. It seems all the train tracks were blown up in the war here in the 1990s… and have not been replaced. From Budva, it will be in to Albania then Greece…
So what has been turning your world upside down? Give me the Reader’s Digest version.. not just the headlines!  I hope you are _________ blankety-blank-blank (because some things are just too precious to share).
Hugs
Zeke

From: Marcela Yvonne Sent: Friday, May 25, 2019 12:47 PM To: John R Subject: Not a quick story / Re: Just wondering….

Sailorman! I’m just relaxing in my new-ish, light-filled, bedroom (feels like a bit of a tree house :), sipping the Saturday morning/noon cuppa Joe,  wondering what his Salty-ness is up to, where on earth his Sexy-assed-self is parked right about now, and then there you be, right in my lappy! The shit storm(s) is/are a big story… the Reader’s Digest is that I have Lyme disease. It got ugly. It’s what started all those bizarre symptoms in the winter, probably been hiding in my body for years (not uncommon at all), triggered by who-knows-what, the possibilities in my world specifically are endless… and because it’s me, and my never-straightforward life, I couldn’t just pick an easy disease, you know, one where you have symptoms, they test, they find it, they diagnose it, they treat it, you live or you die. No no no! I have to pick one that is as politically as it is medically contentious, argued/denied, yes full on denied, controversial, impossible in every way including (mis/un) diagnosis and no treatment works the same for everyone and where it and possible co-infections are at in their body. My (ex) GP literally said this: “I, and many of my colleagues, don’t believe in chronic Lyme disease.” Where the fuck do you go with that? We vaccinate pets and farm animals against it… but they don’t ‘believe’ in it? No seriously? Where the fuck does one go with that?

In any case, thank my own resourcefulness and my Ungods, I’ve had a really great Naturopath in my back pocket for years now (because the mainstream wasn’t doing anything useful for me years ago, either), and she has prescription rights if I decide to go the pharma route. She also has Lyme and even before I knew that, I have always trusted her, fully, unlike previously noted (the real quack) GP. No treatment for this beast is straightforward or simple and pharma-antibiotics are problematic for a thousand and one reasons specific to this/these bug(s) so, there is no quick and dirty fix. I’m taking all manner of things and it is actually working, at times making it worse/before better, but that’s how it works, and costing me buxx I don’t have to spare, but that’s how it works :) It turns out that many of the herbals and my own witches brew that I’ve been making/using for years to keep that annoying virus in my body at bay, also have antibiotic properties, antimicrobial (Lyme/Borrelia in its many incarnations is a bacteria), so quite inadvertently, I have been suppressing its havocs for some time. If I ate garbage food, didn’t exercise regularly and other bla bla, I likely would have been sick years ago. Sweat, elimination, in all its various forms, is one of the keys to getting this thing out, it likes to hide and morph, and in the words of said Naturopath, it is a marathon, not a sprint. Realistically, so is any other serious illness, including cancer and some of the other ones less controversial, in this moment, because they all were/are, at some point. This past week is the first time in many months that I have felt almost OK, it’s on the upswing, and I have so much more big-story on all of it, but that is almost enough of that.

I work really hard at not going down the various rabbit holes around it, it has been nothing short of traumatizing because of all the bullshit around it, never mind the seriously big, seriously scary manifestations and myriad crazy symptoms I was having, it impacts every.single.system in the human body, and is a transformer… between all that and the full on dismissal by previously noted (ex)GP, she just doesn’t know that bit yet, I have my reasons, it has been one of my life’s biggest hells, and we know I’ve seen a few… maybe more than reader’s digest, sorry/not sorry, it isn’t a quick thing in any regard, always prompts big questions from others, so I’ve just tried to pre-empt some of those, for your benefit, and mine.

Also, my world feels upside down cause my mama’s been diagnosed (finally) with Parkinson’s, and really, in her (translated) words, if we’re going to get that particular horribleness, one’s eighties is a much better time than for example one of my clients, our age, or younger. Medication has made a huge difference and she is also doing better than she has in a long long time. My SunnyBoyManchild was an inadvertent auditory-witness to the horrific murder of someone in the suite directly above him in his building, just a short time ago, so my most-loved humans and I have not had an easy time of it in recent weeks and months. Thanks for asking Sailorman, a lot, it means something.

On a better note, moving in here was a challenge (huge understatement) because of the above getting worse and worse, and really crappy space planning on the landfolks’s part, but it’s coming together, has also cost more money/energy than I have, and there is lots left to do, but I’m loving it now, have even had enough energy in the last week to explore, look for trails, spend a bit of time down at Transfer beach… found the marina, and fondly thought about the other one I know, the Lady Jezebel and her Sexy-assed man at the helm… I’m loving Ladysmith so much more than I thought I would, and 30 minutes max door-to-door for work is an absolute luxury. I love this new-ish job, cause if I have to work 5 days a week at this stage to barely make ends meet, that really needs to be the case, so it certainly helps in the grand scheme of things.

Summer/balmy spring comes once in a while, it is raining today, not a bad thing, the Duncan area is already mumbling ‘drought,’ and Alberta is already on fire… decent weather predicted for tomorrow, really hoping to get to the beach for an hour or two, and then a simple trail jaunt… it’s so lovely to have enough time left in work days/weekends because I’m not constantly trying to ‘get somewhere,’ or maintaining a ridiculous house and property. If Ima pay someone else’s mortgage, it needs to be like this. Summary: it’s getting good in the hood again SaltySailorman. Big big lessons in all shapes and sizes in all of it for me, and it has all forced a bit of a Marcela-mellowing that is challenging to articulate, but welcome, very welcome, for sure.

Your adventures sound absolutely grand, and I am not a bit jealous, I am full on fucking envious and marvel at how well you have worked this entire life thing out! If I can’t be doing it myself, I am happy to enjoy it in the form of your missives. I LOVED Mostar, that entire part of the world… I was heartbroken when I learned during that war that that most amazing bridge had been destroyed! I spent a month the summer of my 25th birthday in Dubrovnik and its surrounding areas with my mama and step-papa, that was before that particular war, it was stunning, just fucking stunning! Did you get to Plitvice? It’s Sunny’s dream, he is a water(fall) hound, nature nut, like the mama.

___________ blankety-blank-blank (because some things are simply too precious to share…). I’m looking at all these words and thinking oh dear, I’ve written a book, but that dear Sailorman, is what writers do. And I am nothing, if not that. Big brain fog and all. I hope your tribe is well, (almost)new-grand baby and all! Clearly, you are. Yay! Hugs back Sexy-assed SailorZeke, and smooches, and _________blankety-blank-blank, always…

xoxo

~M/F.

Writing and Zeke/Marcela Photographs are mine, image of the Original Mostar Bridge located via Google Image Search:

 

 

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This is NOT a Sob Story: Part I

19 Sunday May 2019

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This is NOT a sob story and it is just the beginning.

The more I learn about this thing, and trace back to what at first glance appeared to be unrelated ‘health issues’ over the last couple/three years, Hashimotos is just a single example out of many, the more I understand this ‘thing,’ and the angrier I get with my (ex)GP and the mainstream healthcare system.

I have had to become my own doctor in so many ways, and so much of my (and others) suffering could have been pre-empted, treatment could have been so much simpler had a few connections been made, that I have now made myself. There could be a thousand and one reasons I tested negative for Lyme, including the fact that it may well be different bacteria, with very similar, equally serious symptoms, and/or, how we test for Lyme remains inadequate at best, and negligently pathetic at worst, resulting in many (documented) false negatives. Whichever it is, I am well beyond ‘acute’ which is the most treatable phase of this beast, well beyond ‘chronic,’ into the third phase, which impacts every single part of my body, every single system.

Some days the only thing I can do is stand, because sitting is too painful… and that’s just the tip of the symptom iceberg… Game changer does not begin to describe it, this thing. In a pm conversation with my BFF, I likened it to addiction, in that it morphs, hides, changes, is resistant to treatment for all of those reasons, just as stigmatized, judged (but you don’t look sick… fuck you!), and mis-understood.

The mainstream healthcare system did fuck all to support me in that battle, why the fuck would I be so delusional as to think they will help me with this one! No seriously? Why? This is not a sob story, this is my reality, it is complex, brutal, and there is no quick fix. So if you find it overwhelming (imagine how I feel?), fuck the fuck off already, permanently. Don’t bother just unfollowing or snoozing, please, that is so fucking passive-aggressive that it seriously brings out the ‘violent’ in my hard-core anti-violence stance. Stupid as they generally are, some interwebs memes are at least accurate: “…if you can’t take me at my worst, you do not deserve me at my best…”
~Marcela.
Crown in place, at the bottom of the sea floor, closely guarded by PinkFish and her compagnons silver fishes… Don: like my other favourite artist, Vincent, you lay the paint on thick, in layers, because real stories cannot be told in veneers and with thinly brushed, watery strokes, for the truth, rarely lies at the surface.. I love you, and you MySue. I would drown without both of you right now.

PinkFish – original art by Don Bruce, Terrace BC

Writing and Photographs: please share if so inclined but do refrain from plagiarizing and using photographs without permission. Thank you.

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Madam Bitch-Slappy

07 Tuesday May 2019

In my vertigo-ed state
I lurched to my perch,
for the water-coloured sky
changed as quickly,
as Life-Dom Madam Bitch-Slappy,
has changed mine…

~Marcela.

May 7, 2019
Photographs and Writing: All Rights Reserved

 

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No Permanent Affliction

04 Saturday May 2019

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The truth is:
There is no permanent affliction or injury
physical; emotional or psychological,
sustained in the day to day sport of human living.

The truth is:
There are only innings, periods, heats and quarters
of battle, endurance, triumph or loss
in this game called life.

The Truth is:
the ether or some mystical inhabitant of it
keeps not, (y)our score of wins or losses, deserved and not
you and I, solely, are umpire, referee, and judge.

The truth is:
There is no permanent affliction
physical, emotional or psychological
only Game Changers
permanence and winning are a Lie.

So play the game
play it well,
play it now. 

~Marcela.
May 03, 2019.



An intruder has taken up squatter’s rights in my body.
Whether microbial, myco-toxic, fungal or parasitic (all four?)
in nature, it is fucking me up but good: my hair is falling out, 
there are moments during which I feel like I'm going to have a 
seizure any minute, I can't feel my limbs half the time and the 
other half it feels like something is crawling around inside them, 
or biting me, from the inside out. My kidneys hurt all the time, 
my vision has taken a beating, it is blurry half the time, 
my eyes are pinned all the time, and I see floating spots 
every time I blink. I have a constant 'cold,' I am in physical 
pain all the time, it ‘travels,’ my ears ring most of the time, 
I sound like a crack whore, I have had a tooth (molar) removed 
because my (awesome) dentist and I thought maybe the numbness 
was because of that, way back in December, when things first 
started. That hole in my mouth severely impacts my ability to 
eat certain things and the way I talk. I talk for a living.

I have been treated (to the tune of what is adding up to 
thousands of dollars) by my (awesome) naturopath for (potential) 
mold/mycotoxin illness and parasites, gotten rid of furniture I 
can’t afford to replace because potential mycotoxins, taken more 
(unpaid) time off work, lost too much income, to travel and see 
the most useless doctor on earth almost weekly for pretty much 5 
months (here, have some anti-anxiety meds and/or pain killers… 
no, thank you anyway…), and everything I have/am experiencing 
points to Lyme, or some other bacterial/parasitic/fungal thing, 
but she does ‘not believe’ in that, ‘does not have time’ for 20 
different things, symptoms ( but that’s how Lyme, and other less 
common microbes work in the human body) in one visit or 40, 
couldn’t be bothered to test for anything outside her limited 
box, and literally gets (intimidation) uppity when I mention 
anything I have talked about (including Lyme) with other health 
care professionals.

The list of her endless negligence and tyranny toward me is so 
big and hurts so bad I can’t even go there. It is safe to say 
that other than pregnancy when they said I couldn’t, I have 
never hoped for a ‘positive’ test result from a healthcare 
professional in my life, until now. The walk-in doc I saw in 
Nanaimo last week gave me no useful news yesterday, and won’t 
take me on as a patient because he’s leaving that clinic anyway… 
but he did give me the name of another doc there, and I managed 
to get an appointment with her for next week. In keeping with 
the recurring theme in my life, none of this is straightforward 
and it might even go way back to something I may have picked up 
working at the hospital in Duncan about 3 years ago, remember the 
Hashimotos thyroid thing (?), and I will continue to work with my 
naturopath, who unlike the ex-GP, is not intimated by other 
perspectives, mainstream medicine or the folks in it, 
she believes they should all work in a complimentary and 
collaborative way. Yeah, me too, but it feels like that is 
so far away from what we have that it borders on wishful 
thinking and we all know how I feel about that shit.

I am not giving up, while at the same time, 
working extraordinarily hard not to let my anger 
and hurt consume me, for it is not productive, 
harms me more, and attempting to regain some measure of life 
quality, while working full time (there is very little choice 
here) in a field and area of said field, which requires my full 
physical, mental and psychological acuity. I am out of energy, 
out money and out of credit, but I repeat, more to hear it myself 
than for your benefit, I am not giving up. 

She is a brutal fucking bitch at times, this game called life, 
and she is in a particularly bitch-slappy mood at this juncture. 
What she doesn’t know however, is that at least in this very 
moment, right here, right now, so am I.

~Marcela: Battling, unwell, wielding all power toward 
living, for survival is no longer an option I am inclined to 
entertain.

The Score

Illness: 5 (months, maybe years…)
Marcela: 1 (tenous)
GP: Useless but winning, because safely swathed, in God-like 
white coat, and unbeknownst to her, fired.

PS: Please, oh please, spare me the ‘you got this,’ and any 
manner of ‘positive energy’ and other platitudes. And please, 
oh please, respect my beliefs by not, under any circumstances 
praying for my Atheistic-Realist soul, in the same way I don't 
atheist all over your posts/struggles/issues/triumphs... 
for the only defense I have left for this manner of 
un-helpfulness, is delete and block. No tackle left for 
bullshit, not a smidge. Comments the likes of ‘this sucks ass,’ 
are so much more meaningful, as are none at all, if positivity 
and prayer are all you know how to do to support someone in pain. 
Thanks.

PPS: If I have to 'deal,' with whatever is eating me alive, 
I will do it wearing cherries and polka-spots...

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